Ask An Expert

Each month the Diabetes Patient Advocacy Coalition presents an Expert on an issue. We want advocacy to be easy, so we make our ACT NOW actions easy. We also know advocates will want simple paths that lead them to the details of issues, so we host webinars with the quality of leaders who present at diabetes conferences.

On this page, you can register for future webinars and replay ones you may have missed. Think of this as a TiVo of diabetes advocacy sessions.

Replay: Diabetes & Commercial Insurance – Ask An Expert: Dr. Edmund Pezalla, MD, MPH

ejp-photo-nov20131Insurance is complex and diabetes is a complex disease to manage; trying to navigate commercial health plans for the best options can be even more complex with diabetes!

Last year in October, we held a very popular online presentation with Dr. Edmund Pezalla, MD, MPH about key things patients should consider (specifically people with diabetes) when selecting a commercial health plan.

Dr. Pezalla walked us through the different types of  plans (including Medicare), how to determine what type of insurance may be right for your diabetes, what you need to know before you enroll, and what questions you should be asking.

Dr. Pezalla was the Vice President for Pharmaceutical Policy and Strategy in the Office of the Chief Medical Officer at Aetna. He is in the process of writing a book on patient decision making in the insurance enrollment process. We are honored to have him share his expertise.

He is a graduate of Georgetown University College of Arts and Sciences, Georgetown University School of Medicine, and the University of California at Berkeley School of Public Health. He completed his residency in Pediatrics at the Bethesda Naval Hospital and post-doctorate in Health Policy at the University of Michigan, Ann Arbor.

It’s that time of year to prepare for health insurance plans.

Click here to watch the webinar and be ready!

Ask An Expert: Trip and Doug Stoner – State Advocacy Inside and Out

 

Join our Experts Trip and Doug Stoner in a conversation on advocating for people with diabetes in the state legislature.

Double the Experts: The Powerhouse Couple: A Diabetes Advocate and a Former State Senator 

Register Now

Trip and Doug will share their unique perspectives. Trip is an active advocate for people with diabetes in Georga. She organizes Type 1 Diabetes Day where the state legislators interact with people with Type 1 to learn the realities of living with diabetes. Doug, a former state senator and now a lobbyist, will share the perspective of an insider on what works best.

Doug and Trip will speak about practical techniques highlighting the importance of building connections in the statehouse. These can be more than channels to help inform state policy for people with diabetes. Many members of the U.S. Congress begin careers in state legislatures and carry the relationships they build locally with them to Washington. In this way, advocacy contacts can become increasingly productive.

Register now for the Webinar

Ask An Expert: Drew Wayne – What Really Happens in a Congressional Office

Curious as to what goes on in a Congressional office?

  • What are the different roles in the office?
  • What’s the process for getting from an idea to a law?
  • Who cares about diabetes issues in Congress?
  • How can you make an impact with your Congressperson?
  • Let’s be frank: who really runs Congress?

 

Drew Wayne

Drew Wayne joins DPAC for our February “Ask An Expert” presentation. Mr. Wayne is Policy Director for Representative Tom Reed [NY-23], Co-Chair Congressional Diabetes Caucus. Mr. Wayne will be sharing an insider’s view of Congress.

Drew Wayne has worked for Congressman Reed since 2010, first starting on his campaign upon graduating from St. John Fisher College in Rochester, NY and beginning in his Congressional office in November of that year. Drew has focused on several policy areas for Congressman Reed throughout his tenure in the office, including healthcare and the Congressman’s role as Co-Chair of the Diabetes Caucus. As Policy Director, Drew oversees the Congressman’s legislative agenda, coordinates staff to advance initiatives and interfaces with stakeholders in New York and Washington, DC as well as other Congressional offices, Congressional Leadership, Committees and the Administration.

Click to Register

February 22, 2017

2:00 PM Eastern Time

Want to make sure your questions get answered?

Skip the line! You can ask them in advance using this form.

Ask An Expert: Al Jackson – DC’s New Health Leaders

Al Jackson joined DPAC for our first “Ask An Expert” presentation in 2107 and provided background on the new administration’s health team: the health leaders in DC.

Who will be driving? What policies? Where in the New Administration?

Click to Play

 

Understanding who the key players are, where they will work, and what positions they stand for are all critical to how patients can engage with policy. Al shared the back story on the major nominees and help individuals understand how their views can be used to shape advocacy messages.

Al Jackson is a veteran Washington, DC healthcare public affairs executive and leads the Spectrum Science Public Affairs practice. He has nearly 30 years’ experience in public affairs, issues management, health advocacy and legislative and grassroots communications. With a deep understanding of the issues, Al shares his perspective as a frequent speaker, writer, blogger and Tweeter on the nexus of politics, policy and health care. Al holds a B.A. from Lafayette College and a law degree from George Mason University.

Click to Play

 

Diabetes & Commercial Insurance – Ask An Expert: Dr. Edmund Pezalla, MD, MPH

ejp-photo-nov20131Insurance is complex and diabetes is a complex disease to manage; trying to navigate commercial health plans for the best options can be even more complex with diabetes!

Join us on Friday, October 7 at 12pm Eastern as we learn from Dr. Edmund Pezalla, MD, MPH about key things patients should consider (specifically people with diabetes) when selecting a commercial health plan.

Dr. Pezalla will walk us through the different types of  plans (including Medicare), how to determine what type of insurance may be right for your diabetes, what you need to know before you enroll, and what questions you should be asking.

You will have an opportunity to ask general questions related to commercial  insurance plans and gain knowledge from one of the top experts in the commercial insurance field.

Dr. Pezalla was the Vice President for Pharmaceutical Policy and Strategy in the Office of the Chief Medical Officer at Aetna. He is in the process of writing a book on patient decision making in the insurance enrollment process. We are honored to have him share his expertise.

He is a graduate of Georgetown University College of Arts and Sciences, Georgetown University School of Medicine, and the University of California at Berkeley School of Public Health. He completed his residency in Pediatrics at the Bethesda Naval Hospital and post-doctorate in Health Policy at the University of Michigan, Ann Arbor.

Register today and share with your circles. 

Ask An Expert: Access Matters – Gary Scheiner, MS, CDE

 

If you’re frustrated with what’s going on with insurers and finding access to the tools, medications, and services you need to stay healthy with diabetes, play back this DPAC Ask An Expert with Gary Scheiner.

Gary Scheiner, MS, CDE (and PWD)

DPAC_AAE Gary ReplayGary Scheiner, MS, CDE joins the DPAC Ask an Expert series with a webinar on why access to the appropriate diabetes tool matters. Gary is internationally recognized for his expertise in helping individuals to successfully engage with their diabetes, the author of a number of prominent books on diabetes care and is himself a person with diabetes. He brings his diverse experience to the conversation on access. Click here to play the free webinar recorded on August 31. (Registration required.)

Gary is the owner and clinical director of Integrated Diabetes Services (http://integrateddiabetes.com/). He is an award-winning Certified Diabetes Educator, Masters-level Exercise Physiologist and person with type-1 diabetes since 1985, Gary Scheiner has dedicated his professional life to improving the lives of people with insulin-dependent diabetes. He was recently named 2014 Diabetes Educator of the year by the American Association of Diabetes Educators.

To learn more about #diabetesaccessmatters and why it should matter to you, visit the Diabetes Access Action Center

FDA and DPAC Webinar on Artificial Pancreas – #DOCasksFDA

Webinar on Artificial Pancreas

A Dialogue between the FDA and the Diabetes Community- Thursday, June 2, 2016

DPAC_ASKanEXPERT_FDAOn Thursday, June 2, 2016, the FDA will host a webinar to share general information about how the FDA regulates diabetes devices and ongoing efforts to accelerate the availability of artificial pancreas devices. The webinar will focus on current and emerging artificial pancreas technologies, and the FDA’s role in reviewing these technologies for safety and effectiveness.  Representatives from the FDA and the Diabetes Patient Advocacy Coalition will be available to answer questions from webinar participants.

Webinar Details

Date: Thursday, June 2, 2016
Time: 2:00 -3:00 PM, Eastern Time

To hear the presentation and ask questions:
Dial:
888-603-9738; passcode: 8218260 | International: 212-547-0409; passcode: 8218260

To view the webinar presentation you must download the free WebEx software plug-in:

·         Before the webinar, visit the WebEx Downloads webpage

·         Under the WebEx Event Manager heading select the download for your operating system.

On the day of the webinar, use the following link to view the presentation:
https://www.mymeetings.com/nc/join.php?i=PWXW8131511&p=8218260&t=c

Following the webinar, a transcript and the video recording will be available athttp://www.fda.gov/CDRHWebinar.

Please note the FDA does not provide Continuing Education Credits (CEU) or Certificates of Attendance for webinar attendance.

If you have any general questions about the FDA’s regulation of medical devices, please contact CDRH’s Division of Industry and Consumer Education (DICE) at dice@fda.hhs.gov, 1-800-638-2041, or 301-796-7100. 

Food and Drug Administration
Center for Devices and Radiological Health

Replay: Ask An Expert: Tom Karlya

Tom “Diabetes Dad” Karlya joins DPAC to share the success of Reegan’s Rule in North

DPAC_ASKanEXPERT_TK PlayCarolina as a precedent for other states.

Why we’re excited.

Tom knows that advocacy happens when people act and where they act. He will share the heartbreak that drove the creation of Reagan’s Rule and how we can honor the children who have been lost to a lack of a timely diagnosis of Type 1 diabetes by working with our state legislatures.

Children with Type 1 diabetes are being missed; their symptoms are dismissed as flu/virus initially; causing extended hospital stays, enormous loss of workdays, incredible family hardship and in some instances, severe brain damage and death in children needlessly.

Learn what has worked.

View the archived recording of this important presentation here.

Ask An Expert: JDRF’s Dr. Aaron Kowalski, Ph.D and Cynthia Rice, MPP

DPAC_ASKanEXPERT-300x300It is an honor to have two prominent advocates for Type 1 diabetes join us for a special Ask An Expert on March 29th at 12pm Eastern.

If you’re unfamiliar with Dr. Aaron Kowalski and Cynthia Rice and the work they do at JDRF, we’d like to take a moment to share why we’re excited.

Dr. Aaron Kowalski

Diagnosed with Type 1 diabetes in 1984 (the second diagnosis in the family; his brother was diagnosed in 1977), Aaron was inspired to understand and change the world of diabetes through science. After obtaining a Ph.D in molecular genetics, he has become one of the world’s most celebrated experts in diabetes technologies, especially in the area of artificial pancreas.

At ease sharing information to both scientific and patient venues, he brings his multifaceted perspective as a scientist, advocate, and person with diabetes. When he’s not working tirelessly to change Type One into Type None, you’ll find him running (with 17 marathons under his belt!) to show the world that individuals with Type 1 can live without limits.

Dr. Kowalski is the Juvenile Diabetes Research Foundation’s first Chief Mission Officer and Vice-President of Research. He’ll share his thoughts and views on Type 1 diabetes policy advocacy and the role that patients can play in helping ensure our community remains healthy – and hopeful – for better therapies and  a future cure.

Cynthia Rice, MPP

Ms. Rice has spent her entire career advocating for a better America, including positions in the White House and Senate. Since 2005, her stellar accomplishments have benefited those with Type 1 diabetes.

Currently the Senior Vice-President of JDRF for Advocacy & Policy, her focus is JDRF advocacy to Congress, the executive branch, regulatory agencies, and health plans. She received her Masters in Public Policy from University of California, Berkeley and her bachelor’s degree from Harvard University.

She’s worked closely with Dr. Kowalski on accelerating artificial pancreas technology and we look forward to hearing her insights on the current state of Type 1 diabetes policy and what we can do to  advocate for our community.

Join DPAC, Dr. Kowalski, and Cynthia Rice on March 29 at 12pm Eastern by registering here.

DPAC Insiders – 1st Quarter, 2016

DPAC Insider 600x300

Do you know that you can look back and forward at the same time? That’s what we’re doing with our DPAC Insiders quarterly dialogues. Our first was recently held and we shared what our diabetes policy advocacy community has done together and what we are planning on spearheading in 2016.

If you missed the live presentation, you can watch the recording by clicking here. 

What DPAC Accomplished in 2015

DPAC officially launched the online portal for patient diabetes policy advocacy on June 1, 2015 and since then, our DPAC Insiders (if you’ve sent a message or joined, you’re one!) have taken 2,750 “Actions,” sending tweets and emails to elected representative on both a federal and state level.

We’ve helped push two bills forward: the CGM Medicare Act of 2015 and the National Diabetes Commission Clinical Care Act. (Still bills, not laws yet!)

We’ve raised our voices about the importance of enforcing infection control policies on a state level, as people with diabetes have endured preventable Hepatitis B outbreaks because of the sharing or improper disinfecting of diabetes testing supplies.

We created the DPAC Scorecard. DPACs Scorecard helps you see where U.S. Congress member stand on legislation that will help people with diabetes. With the Scorecard, you are able to simply click and tweet Congress.

What is DPAC’s Focus for 1st Quarter 2016?

CGM Medicare Act of 2015

Medicare should join the vast majority of private insurance providers in making CGM accessible by Medicare patients. American seniors, who are successfully managing insulin-dependant diabetes, should not lose this powerful tool when they join Medicare. This bill will also possibly help with artificial pancreas pathways and getting CGMs covered by Medicaid in all states.

The Medicare CGM Access Act added 27 House and 6 Senate co-sponsors in the first quarter (so far!) in 2016. We’re closer to getting this enacted, but we continue to need your help!

The Senate Bill and House Bill can be found by clicking the links.

Medicare Competitive Bidding

Speaking of Medicare, we are disturbed by the increased mortality, hospitalization, and patient costs with the CMS Competitive Bidding Program for diabetes supplies. Information from a comprehensive study has shown that CMS is ignoring the facts. You can take action and learn more.

National Diabetes Commission Clinical Care ActPrint

This bill coordinates the focus on diabetes activities and helps the federal government to better address the disease, in a fiscally responsible and effective manner. The act is budget neutral, and prior experience suggest this commission can have a significant positive impact on care. The National Diabetes Commission Clinical Care Act added 19 House and 3 Senate co-sponsors since January 1, 2016.

The Senate Bill and House Bill can be found by clicking the links.

Ask An Expert Series

DPAC has created a monthly Ask an Expert Series to provide professional inside looks into the most concerning problems related to diabetes. In January, our expert from the CDC shared important information on the Risk of Bloodborne Virus Transmission Due to Diabetes Supplies in Healthcare. In December, Dr. Gary Puckrein spoke on the findings of a white paper about CMS’s Diabetes Supplies Competitive Bidding Program.

We have two upcoming Ask an Expert presentations that you can sign up for now (simply click the images to register):

DPAC_ASKanEXPERT_AACE (1)                                         DPAC_ASKanEXPERT

 

DPAC BOOT CAMP 600x600Diabetes Advocacy Boot Camp

No one is expected to be an expert in diabetes policy advocacy just starting out. We will be offering you way to learn how to be an effective advocate through The DPAC Diabetes Advocacy Boot Camps (DABC’s). These will be held online and in real life. You can attend a DPAC DABC in person at:

The Diabetes UnConference Las Vegas – March 11, 2016

Friends For Life Falls Church, VA – April 9, 2016

 

What Will DPAC Do in 2nd Quarter of 2016?

DPAC District  Days

One of the responsibilities of being in Congress is to head home and speak to the people who live in your district. This is the best opportunity to schedule time with your elected officials to speak to them about diabetes related policy. We want you to get up close and personal, so we will provide you the tools to do so. Afterwards, we would love to hear your story in order to encourage more to do so as well.

How Do Candidates Feel About Diabetes?

It’s 2016. That means it’s an election year. DPAC will let you know how candidates feel about specific diabetes issues before you head out to the polls.

Online Resources for Advocates

DPAC will provide you the online resources you need as a diabetes policy dvocate. We will provide:DPACActNowBubble checklists, downloads, in-depth knowledge, and of course…. a little fun.

What Can You Do Right Now?

Become a DPAC Insider. Sign up now and then tell a friend or click a button on the DPAC site.

If you have any questions about what DPAC has done or what we have planned, do not hesitate to reach out and ask us. We are here to make diabetes advocacy easier for you. We value your feedback.

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